Welcome to my Warrior Mums, a collection of family journeys from parents of children/adults with special needs. Some of our mums are advocates or established campaigners, one is a midwife, then we have two nurses, three teachers, two solicitors and a GP....
We've had to adapt to so many government cuts and policies in the last few years and it's taken its toll on families. A major concern is when a young person reaches the age of 18, regardless of whether they have autism or a severe learning disability, legally, they are classed as an adult. As a parent you can no longer make decisions on their behalf. Some Councils are more humane than others and continue to include the family, but for others... and this seems to be a familiar complaint - if your loved one is in Care and you upset the care staff - or social workers -then the chances are they will stop you from visiting. I know one parent who was notified her son had split his head open and was rushed to hospital to have his wound stitched, a week after it happened. Staff didn’t notify her at the time of the emergency because they didn’t have to! Some parents have no contact or information regarding medication or any other health issues about their loved one's welfare, all under the guise of 'best interest'.
The misuse of the Mental Capacity Act has brought a huge increase in applications for Deprivation of Liberty safeguards through the courts. It's hard to believe that in 2017 this government are advocating locking up (and Sectioning) people with special needs in NHS Units and depriving them of family contact. These vulnerable people who are being unfairly punished because this government are unable to meet their care needs, would have had more freedom in the 70s living in large 'institutions' than they do in community care and independent 'of family' living' today...
This blog has given parents the opportunity to share the experience of their unforseen life with a special needs son/daughter. Some have had great support and professional guidance whilst others, sadly, have been lied about and deceived, blamed for their child's 'problems' by some who have no understanding of the disability. Facts about their family life have been distorted and manipulated into many untruths, making parents only too aware that their reputation precedes them in every meeting they attend. They feel judged, disrespected and ganged up on. Telling THEIR story in Warrior Mums puts THEIR truth 'out there' for all to see.
These stories are not only a means of support for parents but also a learning curve for our learning disability nurse following and other professionals.
Thanks for reading and please feel free to get in touch on the contact form below if you would like me to write your story or I can be of any help.