Welcome to my Warrior Mums, a collection of family journeys from parents of children/adults with special needs.
Some of our mums are advocates or established campaigners, one is a midwife, then we have two nurses, three teachers, two solicitors and a GP....
Their stories have been a learning curve for parents and professionals alike.

We've had to adapt to so many government cuts and policies in the last few years and it's taken its toll on families. This blog has given parents the opportunity to share their individual experience of their unplanned life with a vulnerable adult/child.

Some parents have had great support with wonderful professional guidance, whilst others, sadly, have been lied about and deceived, blamed for their child's 'problems' by some who have no understanding of their disability. Facts about their family life have been distorted and manipulated into many untruths, making parents aware their reputation precedes them in every meeting they attend. They feel judged, disrespected and ganged up on. Telling their story in Warrior Mums puts their truth 'out there' for all to see.

A major concern is that when a young person reaches the age of 18, regardless of whether they have autism or a severe learning disability, legally, they are classed as an adult. As a parent you can no longer make decisions on their behalf. If your loved one is in the care of the state and you upset the care staff or social workers then the chances are they will stop you from visiting or from having any contact. Information regarding medication or any other health issues about your loved one's welfare is withheld, all under the guise of your loved one's 'best interest', pulling out the Court of Protection/Mental Capacity Act gagging cards. The cruel message to parents is clear - - toe the line, stop asking questions and taking too much interest or lose contact with your child.

It's hard to believe this government are locking up people with special needs, people who would have had more freedom in the 70s living in big 'institutions' than they do in 'independent living' today...

We have to do something to stop this abuse of power. We have to do something today...

Michelle Daly


20 April 2017

FREEDOM OF INFORMATION - CARE PORTAL COMMISSIONING PROCESS FOR VULNERABLE ADULTS - PART 3 OF 4

FOLLOW UP POST TO

COUNCIL TENDER ADULTS WITH A LEARNING DISABILITY TO THE CHEAPEST BIDDER


 






Well, it's been quite a while since I last blogged and I hope everybody's doing ok.
Many of you will remember the long drawn out saga with my local authority last year when I applied for my daughter to go into residential care. She was offered a place from a residential home where she had spent many happy years in respite. The Home was outside of our County and originally chosen by LCC because there had been nowhere suitable within the boundary to meet Marie's needs. Link to original story Council Tender Adults with a Learning Disability 

When it came to LA decision making the Home of our choice and where we were led to believe Marie had been assessed for was excluded from her selection by the local authority. I was informed daughter could not have the Home of preference because other clients would see it as favouritism and then they'd have to give everybody what they wanted. (And we couldn't have that now, could we?)

When the social worker first told me Marie’s residential care application would be put up for tender I told him in no uncertain terms that was not going to happen. He said it had to happen because it was the law since April 2016 and in compliance with the Care Act.. (I have since learnt that the amendment to the 2014 Care Act implemented in April 2016 states that people applying for residential care must be given a certain amount of Homes to choose from.)

I was in poor health at the time but still hit the ground running as I shared our story with an unaware public. You see the steps our local authority took to put Marie up for tender and against our wishes, as if she was some kind of ebay object, shocked and appalled not only myself but thousands of others around the country.  

Weeks passed and I thought they had reconsidered and were making headway with Marie's preferred choice when the social worker rang me late one afternoon to tell me Marie had been uploaded onto the care portal 2 days ago and would be on it for 7 days and that if nobody bid for her she would be uploaded for another 7. I nearly collapsed with shock.

Nobody bid for my daughter that first week. No bids for your daughter is bittersweet and shows how heartless and cruel the tendering process is. Our story and Marie's cruel treatment went viral and in the middle of the following week I had a visit from two social workers to tell me they had reconsidered and that Marie could go to the home of her choice. Hallelujah..


The biggest question was why were so many people unaware of the tendering process?

Why did so many parents, support workers and learning disability nurses from around the country contact me to express their distress after hearing the way vulnerable people were treated by those who are supposed to care?

  
I needed to find out if this was how every local authority treated its vulnerable people so I randomly selected 28 authorities through What do They Know - Freedom of Information site FOI to see how they dealt with applications for residential care for adults with a learning disability.

I asked the four following questions:


1. Since April 2014 how many adults with a learning disability applying for residential care has xxxx County Council submitted for tender on the internet care portal for care providers to bid for their care packages?

2. How many of these people lacked capacity?

3. How many adults with a learning disability has xxxx County Council successfully placed through the tendering process since April 2014?

4. How many of those successfully placed lacked capacity?



As the FOI results trickled in my heart began to lift; all was not lost. Despite their poor funding and whilst there may be many Councils around the country that still use care portals most of the authorities I contacted did not.



Tendering on care portals is clearly controversial. To submit the details of those who lack the capacity to give their permission is despicable. I am told that no personal details are submitted but that's a contradiction in terms because every word written about my daughter pertains to who she is.

If Marie applied for residential care and had no preference, since April 2016 under the Care Act she should be offered several choices of accommodation.

If Marie had a preference, under the Care Act SW could present her with more options in order to ensure Marie has a fair choice. It’s face to face personalised planning that takes Marie’s needs and preferences into account though we would still have opted for her preferred home that had been keeping her bed for months. Instead they rejected Marie's preferred choice and offered her to three strangers.

So the Care Act promotes a selection of choices to ensure a person's needs will be met. What the Care Act does not do is promote mandatory use of care portals as the SW tried to make us believe. 
 
To ignore the family's wishes and replace the Home of Marie's choice with a one shoe fits all high-handed approach was obviously designed to bully us into doing something I found totally abhorrent. Putting adults with a learning disability out for tender did make SW job easier and I do accept how heavy their work-load can be but by doing so they turned my daughter into a commodity and devastated all the family. Just throw all the vulnerable adults into the drum, give it a spin and see which unknown care providers scroll through their details to see if it’s worth bidding for the care package - or not. Thankfully most local authorities I approached did not resort to using portals and preferred to meet individual needs in a more dignified way.


Click blue links below to individual What Do They Know Freedom of Information requests.


Birmingham City Council
How many adults with a learning disability has Birmingham City Council successfully placed through the tendering process since April 2014?
358*
*This includes both domiciliary care and supported living packages
Birmingham City Council - Freedom of Information

Blackpool Borough Council
“This is not something that Blackpool Council does for clients going into residential care as the choice of care home  would  be  with  the  client  and/or  their  representative;  it  is
is  not  something  Blackpool  Council  would impose.”
Blackpool Borough Council - Freedom of Information 

Bradford City Council
City of Bradford Metropolitan District Council does not make placements on this basis.”
Bristol City Council
“None.”
Buckinghamshire County Council
“I am sorry, but I understand that we do not operate a ‘Tendering Process’ as per the original request and, therefore, cannot assist with this request.”
Buckinghamshire County Council - Freedom of Information 

Cambridgeshire County Council
“We do not use an online portal for care providers to bid for individual care packages. 
Therefore, we do not hold this information for the purposes of the Freedom of Information Act 2000.”
Cambridge County Council - Freedom of Information

Cheshire West and Chester Council
“We can confirm 15 adults with a learning disability accessed residential
care during the period of 2016. Due to changes in the Council’s computer
systems data prior to 2016, and any further information or more accurate
assessment of how this care was tendered, is not held.”

Cheshire West and Chester Council - Freedom of Information

Doncaster Borough Council
“None, we currently spot purchase residential care by the social worker and/or
family identifying a residential home and then the social worker would present this to panel
for approval.”

Essex County Council
“I can confirm that Essex County Council does not hold this information. In response to your clarification question, Essex County Council have never used an 'internet care portal for care providers' where packages have been uploaded and providers invited to outbid each other for care packages.
Essex County Council did pilot a Dynamic Purchasing System, for Adult Social care, for a 6 month period, from November 2014 – May 2015. This system enabled individual care packages to be circulated to the pre-approved Supply Chain and subsequently awarded on a cost / quality basis. If this is the system your question refers to, Essex County Council made 9 Learning Disability Placements via this system.”
Essex County Council - Freedom of Information  


Gloucestershire County Council

I am pleased to provide a response to your request for information, received on 29 December 2016: Since April 2014 how many adults with a learning disability applying for residential care has Gloucestershire County Council submitted for tender on the internet care portal for care providers to bid for their care packages?             Answer = 91

 
Hammersmith and Fulham Borough Council
“None – this is not how we purchase packages.”
Hampshire County Council
“Hampshire County Council does not use this process in order to commission residential
care for adults who have a learning disability
.” 
Hampshire County Council - freedom of information



Islington Council
"None as all residential care in our borough is in-house and all out of borough placements are spot purchases." Obtained directly through email so no link.




Kent County Council
“Residential placements for adults with a learning disability are not
submitted for bids on the care portal. For Learning Disability, Mental
Health and Physical Disability, residential contracts are awarded to new
services/providers following the completion of the Residential Cost Model
process and fees being deemed as value for money, taking into account the
need for the specific service. Once the cost model process has been
completed individual placements are made to a service through the KCC
Adult Purchasing team, taking into consideration the needs of the
individual.”
Leeds City Council

Leicestershire County Council
Leicestershire County Council does not commission through a tender or care
portal bidding process. The authority has an overarching core agreement with
providers against which we commission individual placements that are the most suitable to meet an individual person’s care needs. 
Leicestershire County Council - Freedom of Information 


Lincolnshire County Council
"The Council is uncertain as to which specific portal the question
relates, however in general the Council does not use such a portal for
LD care tendering purposes. Ordinarily, up to three Providers are
short-listed and invited to Tender on the basis of the following
criteria; Ability to meet care/support needs; Service User / Family
preference; Cost; Geography; track record and experience; CQC/ LCC
quality status."
Lincolnshire County Council - Freedom of Information 

Liverpool City Council
“Since 1st April 2016 103 people have been supported through this
process. Eighty five have been placed in a residential setting included supported living, residential and nursing care.”  

Liverpool City Council - Freedom of Information   

Nottinghamshire County Council
“Nottinghamshire County Council can confirm no adults with a learning
disability applying for residential care have been 'offered for tender on
the internet to care providers'”

Nottingham County Council - Freedom of Information 

Oxfordshire County Council
“The Council does not purchase any residential care via the portal, but does
purchase supported living and community support services in this way.”

Oxfordshire County Council - Freedom of Information 

Peterborough City Council
“There has been no tender for Residential Care - placements are made
in accordance with the Care Act and ratified at a Quality and

Plymouth City Council 
“We do not use this tender process.” 
Plymouth City Council - Freedom of Information  

Rochdale Metropolitan Borough Council
“Rochdale Council operates a preferred provider list for learning disability. All packages are commissioned against this list via what is known as an “expression of interest”. Packages are subsequently reviewed against individual need prior to an award being made. 
We do not advertise these on the internet.”
 
Sheffield City Council
“Sheffield City Council does not tender on the
internet to care providers for people with learning disabilities applying
for residential care.”

Warrington Borough Council
Please note that the response to the above is zero because we currently do not tender for LD residential care placements on the internet.
 Warrington Borough Council - Freedom of Information

Wirral Metropolitan Borough Council
“Wirral Council can advise that we the response to Q1 is 'nil', therefore we are unable to assist you any further with your enquiry.”
Wirral Metropolitan Borough Council - Freedom of Information 

Wolverhampton City Council
“In response to your request, we can confirm that we do not tender individual
residential care placements.
Wolverhampton City Council - Freedom of Information 


Choice of accommodation
Annexe A paragraph 5

Where a local authority is responsible for meeting a person's care and support needs and their needs have been assessed as requiring a particular type of accommodation in order to ensure that they are met, the person must have the right to choose between different providers of that type of accommodation provided that:

a. the accommodation is suitable in relation to the person's assessed needs;

b.to do so would not cost the local authority more than the amount specified in the adult's personal budget for accommodation of that type;

c.the accommodation is available; and

d. the provider of the accommodation is willing to enter into a contract with the local authority to provide the identified in the person's personal budget on the local authority's terms and conditions.

6.This choice must not be limited to those settings or individual providers with which the local authority already contracts with or operates, or those  that are within the local authority's geographical boundary. It must be a genuine choice across the appropriate provision.

7. If a person chooses to be placed in a setting that is outside the local authority's area, the local authority must still arrange for their preferred care. in doing so, the local authority should have regard to the cost of care in that area when setting a person's personal budget. 


On behalf of myself and the rest of the Warrior Mums I would like to thank all the authorities who responded to my FOI request. Of course the Law stipulates they had to respond, but still, their attitude to using care portals spoke volumes and reminds us all how much compassion, respect and integrity still flourishes. 



5 comments:

  1. Hey Michelle, glad to know my area do not do the tendering, it's wrong on every level. Marie couldn't have such a more loving mum who goes to the ends to get her what she needs and deserves. Lots of love Soph xxxx ❤️

    ReplyDelete
  2. It's good to know these things isn't it, Sophie?

    I hope certain authorities will reconsider their actions and go back to treating vulnerable people in a more humane way.
    We are their voices and I realised long ago that I, like many other parents will be fighting for what is right until the day I die.

    Thanks for stopping by, Sophie I always appreciate your comments. xx

    ReplyDelete
  3. Yes it is good to know, absolutely authorities need to reconsider their actions, vulnerable people matter we their parents and carers matter. We are their voices and we have to fight long and hard xxxx

    ReplyDelete
  4. Anonymous13:48

    Hi Michelle, thank you for doing all this work. I am sure many families will find it helpful. It is such a relief to know that it is not the norm. Sorry for the lack of contact. I am still very much recovering from my surgery and nowhere near back to normal yet. Lots of love to you and Marie xxx Jane

    ReplyDelete
  5. Long-term home care refers to ongoing support and assistance provided to individuals who require help with daily living activities in the comfort of their own home. This type of care is designed for individuals who may have a chronic illness, disability, or other condition that limits their ability to live independently.

    Long-term home care can include a range of services, such as:

    Personal care: This includes assistance with bathing, grooming, dressing, and other daily living activities.

    Medication management: Home care providers can help ensure that individuals take their medications on schedule and in the correct dosage.

    Meal preparation: Home care providers can help with meal planning and preparation, ensuring that individuals receive nutritious meals that meet their dietary needs.

    Housekeeping: Providers can help with light housekeeping tasks, such as laundry, dishes, and cleaning.

    Transportation: Providers can assist with transportation to appointments, outings, and other activities.

    Companionship: Home care providers can offer social interaction and companionship to help prevent isolation and loneliness.

    Long-term home care is often preferred by individuals who wish to maintain their independence and remain in their own home. It provides a more personalized and flexible approach to care, allowing individuals to receive the specific support they need. Additionally, long-term home care can be more cost-effective than other types of care, such as nursing homes or assisted living facilities.

    Overall, long-term home care can help individuals maintain their quality of life and independence while receiving the assistance they need to live safely and comfortably in their own home.

    ReplyDelete