|Autism awareness march in Edinburgh - 2008|
Then the staff said; "You have to go now! If you don't go I have to use police."
Then the staff left home to allow Tianze finish his lunch at home ...
Then they back again...
Tianze still didn't wish to go ..
Then they called police....
Tianze was removed to go to hospital in Fife, Scotland, by police on 28th of April 2014.... And he hasn't been home since....
M. Hi Nina, welcome to warrior mums. Can you tell us about your younger days?
I had lots of interests as a child. I enjoyed reading, writing, sports, and loved swimming in the river in front of our house. I spent all summer holidays swimming in the river and have lots of happy memories.
|Student at Beijing Normal University 1984|
In November 1997, my son was born same place as me in Hangzhou, China. He was a small baby, only 2.5 kG. We called him Tianze, which means God bless.
M. Maybe you would like to tell us what made you decide to come and live in the UK?
At first we lived in Tunbridge wells in Kent, with a Christian family who kindly accepted us into their home for 3 months. The couple were in their 70s and we very much enjoyed our stay with them and Tianze was so happy and presented no problems whatsoever.
Tianze did well in mainstream school considering his difficulties and we settled down and made Scotland our home. In China because of the books I'd written and my involvement in human rights, my passport had been taken away for 10 years. Now, here in Scotland, with my MBA degree I manage my own limited company free from an oppressive country like China that will never affect my son.
|Me and Jeremy Hunt|
I feel I have achieved a lot in my life and strive to be the best that I can be. I'm a member of The Conservative Friends of the Chinese and often get invited to social events at Downing Street. Last year some friends and I had lunch with Jeremy Hunt and his lovely wife.
|My parents on a visit to Scotland from China|
My dad had flown once before to visit me in Germany when I was studying there. They lived with us for half a year and Tianze adored them both. My mum passed away six months after returning to China. My dad is still there; he is 90 years-old this year.
M. I understand Tianze did well at school until he reached the seniors, can you tell us what happened?
M. Were you happy Tianze was going to get the specialist care he needed?
Tianze finally entered as a permanent boarder in May 2013 and experienced relatively settled period. He continued being treated with Risperidone until October 2013, when it was found to have produced side effects revealed by blood tests, that he had developed increased Prolactin. His consultant from Stratheden Hospital, instructed us to dispose of the Respiridone immediately. At the time we did not realise the effect sudden medication withdrawal could have on Tianze.
M. Was there no possibility of The New Struan taking Tianze back as a pupil?
M. Poor Tianze is very homesick?
How SAD we as parents are!! We feel so powerless toward our son. We are just heart broken
Once my son asked home pillow to bring in the ward to allow him smell home, but it was refused by hospital which made my son immediately self harming himself ….So sad!
Tianze wishes to come back home for Christmas. He is so looking forward, however I can’t give him any answers. For a boy who needs structure in his life, the monotony of living in a hospital with two hours a day regimented visiting hours where we are searched before we can see him; it is no life at all….
M. How do you travel to Middlesborough?
M. You must feel very let down and indeed ambushed when you go to these meetings, especially when you hear they want to apply for guardianship?
“I understand that an assessment in respect of the parent's application for guardianship is currently taking place and will be completed in due course. The children and families service will determine their position in respect of their potential application for Guardianship upon completion of the parental application as advised by their colleagues in the mental health service.
After we received this letter the Mental health officer and the social worker told us we can apply for our guardianship. We were so relieved at this news. However after I started a successful petition to bring my son back to Scotland, they changed their mind.
It was clear in the meeting of October 3rd and meeting of November 11th that they now wish to apply for joint guardianship of my son and said if I refuse joint guardianship then they will apply for sole guardianship. I ask myself why do they want guardianship at all? It has to be to remove our parental rights and challenge decisions we make about our son’s welfare. It is not natural for them to want guardianship when my son has two loving parents. This would never happen in China – how is it allowed to happen in the West?
They said as soon as Tianze return back to Scotland, they will apply their guardianship and I can apply as well. The court will decide.They even complain that my petition made my son worse…How ridiculous is that?
Then the doctor said ideally we need to consider what is the right place for my son as well as the family contact needs, however if they have to wait months then it is too long. He will consider transferring my son to St, Andrews, which could take just a few weeks time.....
Finally the doctor said if Scotland need to take him back, then it needs a plan and a schedule ...and people need to come here to assess him.
However if Scotland can’t deliver a plan to setting an NHS provision for my son this Month, then my son is likely to be sent further South and further from home and that is what our family are strongly against!
|Sad birthday celebration earlier this month in Middlesborough|
When I first arrived in UK I feel very warm that this country accepted us as highly skilled immigrants. I'm personally also very well respected from high level politicians in Westminster.
My son's happiness is our happiness and I have to remind people that he is not totally incapacitated; he can speak, he can write and express his feelings that he wants to come back home and return to school.
There were two ADI meetings (Adults with Incapacity) held by Fife local authority this year and each time they wish to control us by applying for their guardianship rather than provide a personalised care plan for my son!
A blanket incapacity is illegal and to deny a person's basic human rights through incapacity is also illegal.
|Last photo of Tianze at home in April 2014|
November 15th 2014
During our visit, Tianze asked us to write a calendar from since he was admitted in the ward from 6th of May and count how many weeks he has been in the hospital.
It is 28 weeks!
He asked us when he could return home...we can't answer his questions.....when his mood is lower, he always try to pick something from what people say, anything anybody says could upset him. He began to complain his stay has been too long. He grew very agitated and started to bite himself again...then the staff pulled him back to his ward and terminated our visit.
His right arm is swollen and blue .....his left arm is less swollen, however it is still blue; his leg still has deep red injury mark there. We had a meeting with local authority this week on 11th of November. The local authority would like to apply for guardianship toward my son to further remove our rights. We already feel so powerless and now they want to completely silence our voices.
My son is suffering day and night and waits daily for news of returning home to Scotland. We too are suffering day and night. It is our home, we are a family and should have basic rights to a family life. Since Tianze has been in this hospital, he's never had one visit home, not even a few hours.
I read in the newspaper that people tried to bring the prisoners' children into jail to spend weekends with their Mum or Dad. That means even prisoners family life rights need to be respected, however my son is just autistic and has no rights at all....
From the hospital door I walked slowly and heavily toward my hotel room. I saw two sides of street lights that flash on the grey sky as if it is a big cross on the heaven......I pray for God ...Jesus ....you are powerful, we trust you, when can you help us end our suffering ........Please save our children!!
M. Nina, it's been an honour interviewing you even though your story is very sad. I hope the powers that be in Fife accept their responsibility for Tianze' care and put together an appropriate care package which will allow regular family contact.
Bring my autistic son, Tianze, back home to Scotland.
We live in Fife, Scotland with Tianze together happily for ten years but in May 2014 Tianze was moved to a hospital in Middlesbrough, England to make assessment. It was only supposed to be for maximum 12 week assessment but he is still there. It has now been over 27 weeks. Since there is no residential placement in Scotland ready for him, then after finishing the assessment in August, he stuck in hospital.
Every week we have to travel more than 200 miles to see my son in England. It is 12-14 hours journey for a two hour supervised visit. It is not only exhausting but also financially difficult. We are a British Chinese family in Scotland, family life is central to our culture. My son misses home so much. He loves music, so he has written a song called "Back Home" that he sings everyday to me. Every time, when we finsih this two hours visit , we have to good bye, it is always heart broke for both of us.
He wakes up in earlier morning at 4 AM to cross one day off from the calendar and counting the days back home daily. Now he asks us bring his toys, his cloths back home in Scotland in each of our visiting time since himself can't return back home. It is just so heart breaking.
When Tianze is stressed, his behaviour can deteriorate and since he has been away from home his self-harming has gotten worse. Currently his two arms plus one leg are full of his self injury marks while before hospital there is no any injury marks in his body.
The Government promised people with autism would be given the best possible care in their communities. Instead Tianze has been severely let down by the institutions who are supposed to be helping us and he needs to be back with his family where he belongs.
We want the same for Tianze. Please help bring my son home for Christmas.
Thank you so much to the many thousands of people who have supported my petition so far.
12,650 signatures so far.
Petition to bring my autistic son, Tianze, back home to Scotland
To contact Nina on Twitter https://twitter.com/nina77458312