Autism, SEN - Pre-school and Primary.
Like most warrior mums, Jo Worgan has left no stone unturned when it come to tracking down information - anything - that will enable her son to live as full a life as possible. What I love about Jo is her generosity of spirit for sharing all that she learns, and her enthusiasm and optimism that she spreads along the way.
"I knew something was 'not right' before Tom's first birthday.
There were lots of different things that niggled me really and I kept thinking,
something is wrong with this child but I didn't know what. By his second
birthday I definitely knew. He would scream and shout and have meltdowns for no
reason. He would flap his hands and be very active and unsettled. He would not
use a fork or spoon and he seemed to regress with both language and diet."
I was born in Birkenhead, on the Wirral, in north of England, in 1975, then, when I was nine, we moved a few miles away to Moreton.
|Mum and Dad on my wedding day|
|Stephen and Tom discussing world politics|
M. Although Tom’s diagnosis must have been difficult to come to terms with was it a relief to have your suspicions confirmed?
|Andrew with the boys|
Available on Amazon
Available on Amazon
Tom attended a mainstream school for one term and it was a total disaster. This was through no fault of the school's. They did their very best in giving Tom one to one support from the very beginning, even without a correct statement of educational needs to being in place. Tom was only given part time support and it was agreed with the school that he needed full time support. He needed help with dressing, his personal care needs (he was and still is in nappies), his associated sensory needs and challenging behaviours, his lack of danger as well as his entire specific educational needs due to his ASD. However the truth was it was not the correct environment for him to be in. The class size was far too large, 38 children in total, the classroom had all the typical drawings and artwork hanging from the ceiling and it was small so this created lots of sensory overload for Tom. There was also no safe play area for Tom as the school gates were not locked and secure so when outside during morning play, he only accessed at most two hours of school during the morning, he had to hold onto his Teaching Assistant's hand.
M. I'd like to finish with a few words from your book, My Life with Tom. What you say must resonate with parents of special needs children the world over...
'he doesn't look autistic' ,
'how awful for you'
'I am so sorry'
So here is the truth
M. Jo, thank you so much for sharing your journey with us.
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